![]() However, many donors have chosen to allow the Brain Bank to release their names to draw attention to this important work. The identity of donors is confidential and protected by both IRB rules and HIPAA laws. Researchers also conduct extensive interviews with friends and family of the Legacy Donor to understand what they were like in life: including athletic and concussion history, educational and occupational history, medical history, and history of cognitive, behavioral, and mood symptoms.Īll publication of findings are de-identified (without name and identifiable details) unless the CTE Center has received permission from the family to publicize the subject’s participation. Donor Registryįamily members of deceased athletes may donate their loved one’s brain and spinal cord after their death to the VA-BU-CLF Brain Bank to be examined neuropathologically for evidence of CTE or other disorders of the central nervous system. To learn more about how to join the brain donation registry, click here. Everyone who pledges their brain will receive a personalized brain donor card and an informational packet on brain donation. Similar to organ donation, pledging your brain to the VA-BU-CLF Brain Bank is a precious gesture that helps others in a truly impactful way. However, many donors have chosen to allow the CTE Center to release their names to draw attention to this important work.įor urgent brain donation matters, please call the BU CTE Center's 24/7 voicemail/pager at 61.įor general brain donation inquiries, please contact:Įvan Nairby phone at 61 or Madeline Uretsky by phone at 61.įor questions regarding your Brain Donation Registry Card, please contact Emily Stockstill of the Concussion Legacy Foundation at Donation Registry The importance of age at first exposure.A diagnostic test for CTE in living persons.The VA-BU-CLF research team is focused on developing: Shares data and other findings with other researchers.Stores and distributes optimally prepared tissue to qualified researchers around the world.Reports findings to caregivers in a timely fashion.Collects central nervous system tissue samples (brain, spinal cord and eyes) from deceased athletes to better understand the effects of trauma on the human nervous system.McKee and her team of neuropathologists and other investigators have published a large number of studies focused on CTE (see below). For more information on the neuropathological diagnosis of CTE, please see The Second NINDS/NIBIB Consensus Meeting to Define Neuropathological Criteria for the Diagnosis of Chronic Traumatic Encephalopathy.ĭr. ![]() In collaboration with the VA Boston Healthcare System, the Concussion Legacy Foundation, and the BU CTE Center, the VA-BU-CLF Brain Bank contains more than 1,200 brains, including over 700 brains that have been diagnosed with CTE using the recently defined NINDS criteria for the diagnosis of CTE. The VA-BU-CLF Brain Bank research team conducts conducts high-impact, innovative research on chronic traumatic encephalopathy and other long-term consequences of repetitive brain trauma in athletes and military personnel. The VA-BU-CLF Brain Bank is the largest tissue repository in the world focused on traumatic brain injury (TBI) and CTE.
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